MPD Voice’s is to provide clear and accurate information and emotional support to everyone who suffers from a myeloproliferative disorder. We’ve also recently begun funding research towards better treatments – and we hope one day a cure. MPD Voice received a UK-wide award for innovative service to MPD patients in 2009.
MPD Voice is a charity based in the UK and registered under the auspices of the Guy’s and St Thomas’ Charity. Our charity number is 251983-30.
In 2004, several patients with polycythaemia vera (PV) and essential thrombocythaemia (ET) from several countries but living in London began to do research online about these disorders. They discovered that what little information was available online was either frustratingly out of date, incorrect or even downright frightening. They felt that people with MPDs deserved better. These patients joined together with MPD specialist nurses and haematologists at St Thomas’ Hospital in London. Their goal: to create a place where people with MPDs could meet each other and discover they were not alone – a place where people could find information that was both accurate and empowering.
MPD Voice has members across the UK and in many other countries throughout the world. We offer this website, patients’ forums in London, Edinburgh, Dublin, Ireland and other cities, a Peer Support programme to allow people with MPDs to contact others in similar circumstances, and a newsletter for people with MPDs. MPD Voice is also raising money to fund research towards a cure. Most of all we offer hope to everyone who has a myeloproliferative disorder. Please join MPD Voice or email us at email@example.com to learn more.