Archive for News & Events

Living with MPDs Day – experiences of the day

MPD Voice recently held a Living with MPDs Day where patients, their families and friends were able to listen to and benefit from a concentrated wealth of knowledge from the leading experts in the field of MPDs.  Alisia O’Sullivan, an ET patient, shares her experience of the day here. 

All the healthcare professionals who attended and spoke on the day also held a ‘Myeloproliferative Neoplasms Advances Day’ on Friday 18th November 2011, where they presented and discussed the current trial findings and advances in the diagnosis and management of MPDs.  All the healthcare professionals have all very kindly given MPD Voice permission to publish their presentations from this day and the Living with MPDs Day on our website, to view the presentations follow the links in Alisia’s write up.

Santa Run – Ho! Ho! Ho! Sunday 4th December

Santa Run – Sunday 4th December 2011

Join 1,000’s of other like minded festive fun runners for a fantastic 5km or 10km run in Greenwich Park, London and raise funds for MPD Voice – Santa Suits are provided free upon registration.

This event has been organized by Doitforcharity.com up to 2,000 people are expected to take part raising funds for hundreds of different charities and now this is your chance to join them and raise funds for MPD Voice!  No previous experience is required for this event and with a bit of training the 5km distance should easily be within your capabilities.  The new 10km route will test you a bit more – why not get fit in time for Christmas.  The spirit of the event is ‘taking part’ not ‘winning’ so you can run, jog or walk – you decide!

The event always sells out so we recommend you register ASAP to avoid disappointment, entry fee is £20.00 per person, register for this event online at Doitforcharity and don’t forget to choose MPD Voice as your chosen charity.

There is no minimum sponsorship for this race but we would love you to aim for £100 so that you really can make a difference. Anything you raise will be greatly received. Once you have registered please contact us at fundraising@mpdvoice.org.uk and we will send you a FREE fundraising pack and sponsorship forms.

Fundraising Events for 2012

MPD Voice is a registered charity under the auspices of the Guy’s and St Thomas’ Charity (GSTT) and because of this GSTT kindly offer us places on most of their organized charity events.  It is a great way of taking up a challenge and supporting MPD Voice because all the events are organized by companies that know exactly how to run events – all you have to do is take part and enjoy the experience. 

Events for 2012 are:

• Brighton Marathon – Sunday 15^th April 2012
• Adidas Silverstone Half Marathon – Sunday 11^th March 2012
•  London Marathon – Sunday 22^nd April 2012
•  Peru Trek – Monday 30^th April – Thursday 10^th May 2012
• London to Paris cycle ride – Wednesday 6th June – Tuesday 10th June 2012
• The Three Peaks Challenge – Friday 22^nd – Sunday 24^th June 2012
• Mt Kilimanjaro Climb – Wednesday 11^th – Sunday 22^nd July 2012 

Full details for all these events, including how to register are available on our Fundraising page.