Living with MPDs

Each of us is living with MPDs from day to day - and we want to live well for a long time to come.

Chronic diseases like MPD can pose challenges for daily life. In 2007 Dr Ruben Mesa of the Mayo Clinic in the US conducted a survey to study quality of life in people with MPDs. The survey found that people with MPDs can suffer from many symptoms. Fatigue was the most common problem, affecting 81% of people with MPDs regardless of age, type of MPD, treatment or blood counts. Other common symptoms included itchy skin, night sweats and bone pain.

All of us with MPDs want to know how to control symptoms and feel better. In this section you’ll find information on daily living, fighting fatigue, life transitions such as pregnancy, comfort care and more.

  • Everyday challenges

    Find tips for life with an MPD - how to obtain insurance, travel safely, manage common side effects and more.

  • Newsletters

    Our newsletters are about living well with an MPD and keeping abreast of the latest research news.

  • Your state of mind

    All MPDs come with challenges that can increase stress or even lead to depression.

  • Videos

    Learn about MPDs in video interviews of people living with these disorders, and from MPD specialists.

  • If things get serious

    You can maintain your comfort and quality of life regardless of whether your MPD is curable.

  • Ways to feel better

    If you have an MPD, fatigue or recent surgery can lay you low. Find ways to rebuild strength gradually.

  • MPDs in pregnancy

    Pregnancy risks are manageable - plan ahead when possible and work together with your health care team.

  • Staying well

    Staying well with an MPD means building energy, protecting immunity and reducing the stress we feel.

  • Treatment decisions

    Beginning or changing treatment can be an emotional experience.

  • Talking with your doctor

    Research shows patients feel more in control when they communicate effectively with their doctors.