Newsletters

• Everyday challenges
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  • Preventing DVTs
  • Renewing intimacy
  • Coping with side effects
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  • What you may be feeling
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• If things get serious
  • After a serious clot
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  • Reducing pain and symptoms
• Ways to feel better
• MPDs in pregnancy
  • After delivery
  • During pregnancy
  • Miscarriage
  • Options after miscarriage
  • Planning before pregnancy
• Staying well
  • Staying active
  • Keeping track
  • Reducing stress
  • Eating right
  • Know the signs
• Treatment decisions
• Talking with your doctor

If you are looking for treatment leaflets they can be found in the Treatment section.

MPD Voice Newsletters

May 2011
In this issue you will find:

• Research update on JAK inhibitor trials, PEGASYS trial and more
• House of Lords gala and other events raise £40,000
• What is von Willebrand Syndrome?
• PT-1 trial in low-risk and intermediate risk essential thrombocythaemia
• Spartathlon runner raises funds for research
• Integrative medicine: what it is and how can it benefit people with MPDs
• Upcoming Walk for Cure and 2011 skydiving event

September 2010
In this issue you will find:

• MPD Support funds study of drug vorinostat in ET and PV
• Stories of people with MPDs: Gina was diagnosed at age 12
• Cholesterol control matters when you have an MPD
• Palliative care is comfort care
• Low-dose aspirin: always a good idea?
• Abseilers raise £74,000
• French Alps Cycling Challenge

April 2010
In this issue you will find:

• MPD origins: JAK2 a middle step
• Stories of people with MPDs: Patient narrowly avoids amputation
• Exercise helps everyone with an MPD
• Side effects: how to deal with dry skin
• If you need an operation
• Survivorship: After recovery from a bone marrow transplant

December 2009
In this issue you will find:

• Does JAK2 status alter your prognosis?
• Stories of people with MPDs: JAK2 inhibitor trials
• What are MPNs (myeloproliferative neoplasms)?
• Survey of pregnancy in MPDs
• End of life: a nurse’s perspective

July 2009
In this issue you will find:

• MF drug trials in the UK
• Stories of people with MPDs: Cyclist battles PV, stays fit
• Do high white cells imply greater risk?
• Understanding drug trial lingo
• Options when pregnancy ends in miscarriage
• Vitamin B12

December 2008
In this issue you will find:

• Go-ahead for UK trials of new drugs
• Stories of people with MPDs: Starting a family when you have an MPD
• When is “no treatment” a good option
• Reading your own blood test results
• Renewing intimacy when you have an MPD
• Vitamin D and cancer

October 2007
In this issue you will find:

• JAK2 spurs scientists to develop better treatments
• Stories of people with MPDs: Bone marrow transplant
• Q&A Enlarged spleen
• Peer support
• Preventing DVTs while traveling
• 8 crucial steps to protect your health
• Why get involved? Benefits of participation

September 2006
In this issue you will find:

• JAK2 discovery: rethinking the MPD paradigm
• Recognising signs of a stroke
• Top tips for coping with medications
• Signs of a DVT
• Travel tips
• Mayo Clinic and Harvard discover new mutations