Videos

• Everyday challenges
  • Contraceptives and HRT
  • Preventing DVTs
  • Renewing intimacy
  • Coping with side effects
  • Cost of medications
  • If you need surgery
  • Itchy skin
  • Living abroad
  • MPD ID Cards
  • Planning for travel
• Newsletters
• Videos
• Your state of mind
  • What you may be feeling
  • Invisible diseases
  • Communicating
  • Coping long-term
• If things get serious
  • After a serious clot
  • End-of-life
  • Hospice care
  • Reducing pain and symptoms
• Ways to feel better
• MPDs in pregnancy
  • After delivery
  • During pregnancy
  • Miscarriage
  • Options after miscarriage
  • Planning before pregnancy
• Staying well
  • Staying active
  • Keeping track
  • Reducing stress
  • Eating right
  • Know the signs
• Treatment decisions
• Talking with your doctor

Myelofibrosis

Albert talks about living with myelofibrosis (MF) and taking a JAK2 inhibitor drug currently under trial.

Polycythaemia vera

John, a cyclist, talks about his diagnosis with polycythaemia vera (PV) and how he’s stayed active and fit in spite of PV.

Essential thrombocythaemia

Rachel talks about how having essential thrombocythaemia (ET) has impacted her life and how she’s making a contribution by fundraising.

Myelofibrosis, A Patient’s Story

David talks about his diagnosis of Myelofibrosis (MF), and the impact it had on his life and how he copes.

What are Myeloproliferative Neoplasms (MPNs)?

Leading MPD specialists talk about what the characteristics of Essential thrombocythaemia (ET), Myelofibrosis (MF) and Polycythaemia vera (PV) are.

MPNs WHO (World Health Organization) Classification

Why MPDs (myeloproliferative disorders) were reclassified as MPNs (myeloproliferative neoplasms) by the WHO.

MPNs Clinical Presentation and Diagnosis

Leading MPN specialists talk about the symptoms patients present with and the ways MPNs are diagnosed.

Management Considerations for Patients with MPNs

Leading MPN specialists talk about the problems and risk factors patients face and how they gauge these factors and then treat them.

JAK/STAT Pathway Overview

Leading MPN specialists explain the importance of the JAK/STAT Pathway prominence in the pathogens of MPNs.

JAK/STAT Pathway: Discussion on Current Studies

Leading MPN specialists talk about the recent JAK 1 and 2 study results and what they mean for patients.

What Do Patients with Myelofibrosis (MF) Need to Know?

Leading MPN specialists talk about the prognosis for patients with MF and the impact it has on their day to day living.

An Overview of Myelofibrosis (MF)

Leading MPN specialists give an overview of the symptoms patients with MF may suffer from.

Watching videos of other people with MPDs has meant a lot to me.