People with MPDs and MPD specialists talk about ET, PV and MF in these videos.
Albert talks about living with myelofibrosis (MF) and taking a JAK2 inhibitor drug currently under trial.
John, a cyclist, talks about his diagnosis with polycythaemia vera (PV) and how he’s stayed active and fit in spite of PV.
Rachel talks about how having essential thrombocythaemia (ET) has impacted her life and how she’s making a contribution by fundraising.
David talks about his diagnosis of Myelofibrosis (MF), and the impact it had on his life and how he copes.
Leading MPD specialists talk about what the characteristics of Essential thrombocythaemia (ET), Myelofibrosis (MF) and Polycythaemia vera (PV) are.
Why MPDs (myeloproliferative disorders) were reclassified as MPNs (myeloproliferative neoplasms) by the WHO.
Leading MPN specialists talk about the symptoms patients present with and the ways MPNs are diagnosed.
Leading MPN specialists talk about the problems and risk factors patients face and how they gauge these factors and then treat them.
Leading MPN specialists explain the importance of the JAK/STAT Pathway prominence in the pathogens of MPNs.
Leading MPN specialists talk about the recent JAK 1 and 2 study results and what they mean for patients.
Leading MPN specialists talk about the prognosis for patients with MF and the impact it has on their day to day living.
Leading MPN specialists give an overview of the symptoms patients with MF may suffer from.
Dr Ruben Mesa and Dr Veena Fauble, haematologists at the Mayo Clinic discuss bone marrow transplant (BMT) as a treatment option for patients diagnosed with Myelofibrosis.
This conference focussed on the latest advances in MPD, MDS and MPN. The conference was attended by internationally recognized leaders in the field of molecular biology, pathology, immunology and translational and clinical research. One of the goals of the conference was to present new scientific research and advance knowledge of the science and presentation of cutting edge research.
Below are videos from the conference which have very kindly been provided to MPD Voice by Andrew Schorr, Founder and Host of PatientPower.info.
Treating MPNs in the Age of Precision Medicine – Verstovsek
Combination Therapy the Key to a Myelofibrosis Cure – Vannucchi
How ‘Next Generation Sequencing’ Could Improve Prognostic Factors for Myelofibrosis – Vannucchi
Burning Questions: What a Researcher Is Striving to Learn About MPNs – Harrison
Improving a Breakthrough: Combination Therapies with JAK Inhibitors – Harrison
JAK2 Inhibitors: A Breakthrough Treatment for Myelofibrosis – Verstovsek
Should You Stop JAK2 Inhibitors If You Become Anemic? – Verstovsek
El Inhibidor JAK2 la Terapia de Combinación para MPNs ahora y en el Futuro – Cervantes
Watching videos of other people with MPDs has meant a lot to me.