Videos

People with MPDs and MPD specialists talk about ET, PV and MF in these videos.

Myelofibrosis

Albert talks about living with myelofibrosis (MF) and taking a JAK2 inhibitor drug currently under trial.

Polycythaemia vera

John, a cyclist, talks about his diagnosis with polycythaemia vera (PV) and how he’s stayed active and fit in spite of PV.

Essential thrombocythaemia

Rachel talks about how having essential thrombocythaemia (ET) has impacted her life and how she’s making a contribution by fundraising.

Myelofibrosis, A Patient’s Story

David talks about his diagnosis of Myelofibrosis (MF), and the impact it had on his life and how he copes.

What are Myeloproliferative Neoplasms (MPNs)?

Leading MPD specialists talk about what the characteristics of Essential thrombocythaemia (ET), Myelofibrosis (MF) and Polycythaemia vera (PV) are.

MPNs WHO (World Health Organization) Classification

Why MPDs (myeloproliferative disorders) were reclassified as MPNs (myeloproliferative neoplasms) by the WHO.

MPNs Clinical Presentation and Diagnosis

Leading MPN specialists talk about the symptoms patients present with and the ways MPNs are diagnosed.

Management Considerations for Patients with MPNs

Leading MPN specialists talk about the problems and risk factors patients face and how they gauge these factors and then treat them.

JAK/STAT Pathway Overview

Leading MPN specialists explain the importance of the JAK/STAT Pathway prominence in the pathogens of MPNs.

JAK/STAT Pathway: Discussion on Current Studies

Leading MPN specialists talk about the recent JAK 1 and 2 study results and what they mean for patients.

What Do Patients with Myelofibrosis (MF) Need to Know?

Leading MPN specialists talk about the prognosis for patients with MF and the impact it has on their day to day living.

An Overview of Myelofibrosis (MF)

Leading MPN specialists give an overview of the symptoms patients with MF may suffer from.

BMT as a treatment option for patients with Myelofibrosis (MF)

Dr Ruben Mesa and Dr Veena Fauble, haematologists at the Mayo Clinic discuss bone marrow transplant (BMT) as a treatment option for patients diagnosed with Myelofibrosis.

European Focus on Myeloproliferative Neoplasms and Myelodysplastic Syndromes Conference – Madrid April 2013

This conference focussed on the latest advances in MPD, MDS and MPN. The conference was attended by internationally recognized leaders in the field of molecular biology, pathology, immunology and translational and clinical research. One of the goals of the conference was to present new scientific research and advance knowledge of the science and presentation of cutting edge research.

Below are videos from the conference which have very kindly been provided to MPD Voice by Andrew Schorr, Founder and Host of PatientPower.info.

Treating MPNs in the Age of Precision Medicine – Verstovsek