Posted on 17.01.2012 in Fundraising
Please join us for a Holistic Fair on Sunday 15 April 2012,
12 noon to 5 pm, raising funds for MPD Voice, entry fee £3 per person. This event has been organized by D & D Psychic Events www.ddpsychicevents.co.uk and will be held at:
The Traveller’s Rest
Kenton Road
Harrow HA3 8AT
The event will offer:
- Astrology
- Tarot Reading
- Medium
- Reflexology
- Jewellery
- Natural health care
- Various massages
- Stress management
- Indian head massage
- Facial rejuvenation
- Reiki
- Crystals
- Photography
- ….. and more
Download a poster
Posted on 15.12.2011 in News & Events
MPD Voice recently held a Living with MPDs Day where patients, their families and friends were able to listen to and benefit from a concentrated wealth of knowledge from the leading experts in the field of MPDs. Alisia O’Sullivan, an ET patient, shares her experience of the day here.
All the healthcare professionals who attended and spoke on the day also held a ‘Myeloproliferative Neoplasms Advances Day’ on Friday 18th November 2011, where they presented and discussed the current trial findings and advances in the diagnosis and management of MPDs. All the healthcare professionals have all very kindly given MPD Voice permission to publish their presentations from this day and the Living with MPDs Day on our website, to view the presentations follow the links in Alisia’s write up.
Posted on 14.12.2011 in Fundraising
An exciting opportunity to cycle from London to Paris and raise funds for MPD Voice. This event takes place over 5 days, cycling from one iconic city to another through picturesque countryside.
Places are limited, if you would like to take part please complete and return the registration form.
Posted on 17.11.2011 in JAK2 inhibitors Research
Incyte have announced that the FDA (U.S. Food and Drug Administration) have granted marketing approval for 
Jakafi™ (ruxolitinib) for the treatment of patients with intermediate or high-risk myelofibrosis (MF), including primary MF, post-polycythaemia vera MF and post-essential thrombocythaemia MF. Patients with intermediate and high-risk MF represent 80 to 90 percent of MF patients. Jakafi (JAK-ah-fye) is the first and only product to be approved by the FDA for MF, and the first in a new class of drugs, known as JAK inhibitors, to be approved for any indication. Jakafi is an oral JAK1 and JAK2 inhibitor.
You can read the full press release here.
Incyte is a Wilmington, Delaware-based drug discovery and development company focused on developing proprietary, orally available drugs for serious unmet medical needs in oncology and inflammation. For more information visit the Incyte website.
Posted on 01.11.2011 in Fundraising News & Events
Santa Run – Sunday 4th December 2011
Join 1,000’s of other like minded festive fun runners for a fantastic 5km or 10km run in Greenwich Park, London and raise funds for MPD Voice – Santa Suits are provided free upon registration.
This event has been organized by Doitforcharity.com up to 2,000 people are expected to take part raising funds for hundreds of different charities and now this is your chance to join them and raise funds for MPD Voice! No previous experience is required for this event and with a bit of training the 5km distance should easily be within your capabilities. The new 10km route will test you a bit more – why not get fit in time for Christmas. The spirit of the event is ‘taking part’ not ‘winning’ so you can run, jog or walk – you decide!
The event always sells out so we recommend you register ASAP to avoid disappointment, entry fee is £20.00 per person, register for this event online at Doitforcharity and don’t forget to choose MPD Voice as your chosen charity.
There is no minimum sponsorship for this race but we would love you to aim for £100 so that you really can make a difference. Anything you raise will be greatly received. Once you have registered please contact us at fundraising@mpdvoice.org.uk and we will send you a FREE fundraising pack and sponsorship forms.
Posted on 01.11.2011 in News & Events
MPD Voice is a registered charity under the auspices of the Guy’s and St Thomas’ Charity (GSTT) and because of this GSTT kindly offer us places on most of their organized charity events. It is a great way of taking up a challenge and supporting MPD Voice because all the events are organized by companies that know exactly how to run events – all you have to do is take part and enjoy the experience.
Events for 2012 are:
- Brighton Marathon – Sunday 15th April 2012
- Adidas Silverstone Half Marathon – Sunday 11th March 2012
- London Marathon – Sunday 22nd April 2012
- Peru Trek – Monday 30th April – Thursday 10th May 2012
- London to Paris cycle ride – Wednesday 6th June – Tuesday 10th June 2012
- The Three Peaks Challenge – Friday 22nd – Sunday 24th June 2012
- Mt Kilimanjaro Climb – Wednesday 11th – Sunday 22nd July 2012
Full details for all these events, including how to register are available on our Fundraising page.
Posted on 01.11.2011 in Fundraising
We are extremely excited to be able to offer all our fundraisers a chance to take part in the 2012 Brighton Marathon, visit the official Brighton marathon website here.
A friendly rival to the London Marathon (it takes place the week before), this race offers you the chance to take part in history and secure yourself a spring marathon in 2012. The route will take in the best of the city centre and fabulous stretches of coastal road, 
including panoramic views that you’d expect where the glorious South Downs meet the English Channel. The second half of the route is flat and finishes opposite the iconic Brighton Pier.
We have limited Gold Bond Places available. All we are asking for is a £75 registration fee and there is no minimum sponsorship required.
To apply for your place, download an application form and email it to us today at fundraising@mpdvoice.org.uk please help us to continue the vital work of MPD Voice by registering your place today.
If you have secured your own place, we’d love you to join our team. You don’t need to commit to raising a set amount since anything you raise will play a vital part in providing the best care and treatment for patients at MPD Voice, simply email us at fundraising@mpdvoice.org.uk to let us know that you have a place already, we will then send you a fundraising pack.
Why should I join the MPD Voice team?
As a member of our team you will receive:
- A welcome pack packed with fundraising tips and expert training and nutrition advice
- An MPD Voice t-shirt
- Invitations to running training nights, a pre-marathon pasta party and weekend training events
- Cheering points along the route
- A post-race reception with free food and massages
- Excellent customer care from the moment you register
Posted on 01.11.2011 in Fundraising
A fantastic well organised event run by the team behind the Virgin London Marathon.
This half marathon takes place at the historic Silverstone motor racing circuit. Whether you are attempting your first half marathon, or using this event as a training run for the London or Brighton Marathon, this race is for you.
If you would like a charity place in this race, download a form and email it to fundraising@mpdvoice.org.uk. We will then send you a fundraising pack, provide you with a charity t-shirt and offer you on-going training and fundraising advice.
Posted on 01.11.2011 in Fundraising
Competing in this world famous marathon is a dream to millions, many of whom try for years to secure a place. The London Marathon 
is one of the world’s greatest sporting events, and we want to help you be a part of it. There are two ways to enter the 2012 London Marathon – through the ballot entry system (often referred to as ‘own place’) or by registering for a charity place and committing to raise a certain amount of sponsorship.
The ballot has now closed – if you entered it and are interested in running on our behalf please let us know. When you hear from the ballot in October we can either support you with your own place, or discuss offering you one of our limited places.
Own place. If you are successful in gaining a ballot place, congratulations! As part of our team you will have access to all the same benefits as our guaranteed charity place runners but without the sponsorship target. We only have a limited amount of guaranteed places available, so we really appreciate any sponsorship money raised by people with their own places. Please just get in touch and we will welcome you to the team.
Charity place. To qualify for one of our guaranteed charity places, we ask each participant to pay an upfront registration fee of £25 and then pledge to raise £2,000 in sponsorship. We provide plenty of support and help with this so do not feel you are on your own! We receive more applications than we have places, so we will run our own ballot system later on in the year based on who we think can fundraise the most successfully for us. Feel free to complete a registration form and email it back to fundraising@mpdvoice.org.uk.
To speak to the Guy’s & St Thomas’ (GSTT) Events team, call 020 7847 4332 or email fundraising@gsttcharity.org.uk and remember to mention that you are running for MPD Voice!
Why should I join the MPD Voice’s team?
As a member of our team you will receive:
- A welcome pack packed with fundraising tips and expert training and nutrition advice
- An MPD Voice t-shirt
- Invitations to running training nights, a pre-marathon pasta party and weekend training afternoons
- Multiple cheering points along the route
- A post-race reception with free food and massages
- Excellent customer care from the moment you register
Posted on 01.11.2011 in Fundraising
Immerse yourself in ancient Peruvian culture and explore the remote Lares region of the Peruvian Andes.
Experience diverse scenery as we trek through traditional Andean villages and along high remote mountain trails before we visit Machu Picchu, 
one of the world’s most important archaeological finds. For those of you with a love of landscape, a passion for history and a sense of adventure then look no further and come trek with us from Monday 30th April – Thursday 10th May 2012. A deposit of £250 is required to secure your place on this amazing trip.
Minimum Sponsorship Level: £3,600, don’t panic about raising this amount – we are here to help you with your fundraising. We can provide you with your own personalised fundraising plan, including tips and ideas on how to raise more, sponsorship forms and a free charity t-shirt.
Itinerary
The following gives you a brief taste of the challenge ahead but for more detailed information please do not hesitate to contact the Guy’s & St Thomas’ (GSTT) Events Team at fundraising@gsttcharity.org.uk, tel: 0207 848 4332.
Day 1: Fly London – Lima, overnight in Lima
Day 2: Fly Lima – Cusco, time to acclimatise in Cusco
Day 3: Tambo Machay acclimatisation walk
Day 4: Cusco to Lares then on to Kunkani, start walking 3650m
Day 5: Kunkani to Cruzcasa on to Chacchapata, climb to 4200m
Day 6: Chaccchapata up to Hatun Paso across to Yanahuara Alto, walk up to 4600m
Day 7: Yanahuara Alto trekking to Aguas Calientes and Machu Picchu
Day 8: Aguas Calientes – Cusco. Free afternoon
Day 9: Cusco – Lima – UK
Day 10: Arrive London
Further Information/Register
To receive a FREE information pack or to register for the Peru Trek please contact fundraising@mpdvoice.org.uk. For more information or to discuss registering for the trek visit The Ultimate Travel Company’s website please ensure you state that you wish to raise funds for MPD Voice.
