MPD Voice is an charity run by people with MPDs and medical professionals working together to serve the needs of everyone with myeloproliferative disorders. Haematologists and MPD specialist nurses of the NHS in the United Kingdom provided the medical expertise to develop this website, with additional support from haematologists and other physicians of the Mayo Clinic in the United States.
In 2009 MPD Voice won a national award for innovative service to patients.
Our aim is to foster community, provide support and improve awareness and knowledge of MPDs. Starting in 2009 we also began funding research into drug trials in the United Kingdom.
We take a fact-based approach grounded in science. Our goal is not to replace or contradict advice from health care professionals but instead to supplement and complement the information that patients receive from professionals. We explain complex terms in easily understood language; we offer guidance on lifestyle improvements; and we provide emotional support.
We provide a means for patients to keep abreast of the latest appropriate clinical research via a research blog, and research information published on our website and in our newsletters. Additionally we offer a bibliography on our website, pointing patients in the direction of interesting papers.
We hope that our website will be a valuable resource to you in your practice. You are welcome to:
MPD Voice offers substantial grants to researchers doing innovative work in the field of MPDs. Please contact us for more information at email@example.com
We are developing more tools for professionals to use. We welcome any suggestions and feedback from the medical community. Please email us at firstname.lastname@example.org