For professionals

Who we are

MPD Voice is an charity run by people with MPDs and medical professionals working together to serve the needs of everyone with myeloproliferative disorders. Haematologists and MPD specialist nurses of the NHS in the United Kingdom provided the medical expertise to develop this website, with additional support from haematologists and other physicians of the Mayo Clinic in the United States.

In 2009 MPD Voice won a national award for innovative service to patients.

Our aims

Our aim is to foster community, provide support and improve awareness and knowledge of MPDs. Starting in 2009 we also began funding research into drug trials in the United Kingdom.

Our approach

We take a fact-based approach grounded in science. Our goal is not to replace or contradict advice from health care professionals but instead to supplement and complement the information that patients receive from professionals. We explain complex terms in easily understood language; we offer guidance on lifestyle improvements; and we provide emotional support.

How research plays in

We provide a means for patients to keep abreast of the latest appropriate clinical research via a research blog, and research information published on our website and in our newsletters. Additionally we offer a bibliography on our website, pointing patients in the direction of interesting papers.

Support for you

We hope that our website will be a valuable resource to you in your practice. You are welcome to:

Download and print our leaflets. MPD Voice published a series of leaflets on a number of different MPD treatments as well on questions about traveling when you have an MPD.

Print and share pages. Every page in this website is printable. We think you’ll like this new feature! Choose the print option in your browser (File>Print) to convert any page to printable format.

Distribute our leaflets. If you need a number of copies in booklet form please contact us and we will help.

Research grants

MPD Voice offers substantial grants to researchers doing innovative work in the field of MPDs. Please contact us for more information at info@mpdvoice.org.uk

We invite your participation

We are developing more tools for professionals to use. We welcome any suggestions and feedback from the medical community. Please email us at info@mpdvoice.org.uk