Myeloproliferative Disorders Support
Links
Want to explore more information on general health or what's new in haematology? Find links below to reliable, professional organisations.
CancerHelp UK provides information about blood cells and the bone marrow function.
The British Heart Foundation offers Information about living with a heart condition as well as detailed information about healthy eating, staying active and preventing heart disease.
The National Institutes of Health in the US allows you to search for papers within the US National Library of Medicine database (MEDLINE/PubMed). This contains references and abstracts from over 4,500 journals.
Macmillan UK offers support and information for cancer care. Macmillan’s website offers particularly valuable information for people with myelofibrosis, and for their family members.
Lifeblood (The National Thrombosis Charity) offers advice about preventing and treating venous thromboembolic disease (DVT).
General health information and support for other conditions can be found on:
Information on clinical trials in the US and internationally can be found at:
You can learn more about the JAK2 inhibitor trials from several organisations in the United States.
- The MPN Research Foundation (US)
- The National Institutes of Health In the US offers detailed and accurate information on diseases and a search tool to find clinical trials internationally.
- The National Cancer Institute (NCI)’s clinical trials page offers detailed information on trials taking place in the US – search by disease name, for instance “myelofibrosis”.
MPD-specific foundations
Several non-profit organisations and charities focus on myeloproliferative disorders.
MPDChat offers an informative website and a dynamic Google chat room for people with MPDs.
The MPN Research Foundation (US) funds innovative, accountable research into MPD treatments.
The CMPD Foundation (US) provides information, education and support for patients via conferences, doctor-patient sharing.
MPN Stichting is a charity based in the Netherlands which provides information and support to people with MPDs (Dutch only).
Myeloproliferative Disorders Australia offers information and support to people with MPDs in Australia.
Other websites that may be of interest:
American Society of Hematology You can find academic articles and research news from the American Society of Hematology on this website. You can also purchase DVDs of meetings but note that they will not work on a UK DVD player.
Blood is a weekly medical journal published by the American Society of Hematology and is the most cited peer-reviewed publication in the field of haematology.
Haematologica publishes peer-reviewed papers across all areas of experimental and clinical hematology. The journal is owned by a non-profit organization, the Ferrata Storti Foundation.
The British Society for Haematology offers a website with news bulletins and archives.
The European Hematology Association aims to promote excellence in clinical practice, research and education in European hematology. You can find links to professional newsletters and bulletins on this site.
