Myeloproliferative Disorders Support
Pregnant? Please help
The Guy’s and St Thomas’ NHS Foundation Trust (GSTT) is opening the first UK-wide survey of pregnancy in myeloproliferative disorders in 2010.
Many women with a myeloproliferative disorder are young adults in their child bearing years. These women face unique challenges as they start families – risks to their own health and their unborn child. The Guy’s and St Thomas’ NHS Foundation Trust (GSTT) is opening the first UK-wide survey of pregnancy in myeloproliferative disorders in 2010.
Aim of the survey
The survey aims to determine how best to care for young women with MPDs in pregnancy, and to ensure the most successful outcomes for both mother and baby.
Who is running the survey
The Guy’s and St Thomas’ Hospital NHS Foundation Trust in London (UK) is running the survey in conjunction with UK-wide Obstetric Surveillance Survey, or UKOSS. MPD Voice is lending a hand by helping GSTT to publicise this survey.
Can I participate?
If you have a myeloproliferative disorder and are pregnant you can participate by filling out the form below with the name of your haematologist and attending hospital. If suitable your anonymised clinical details may be included in the survey.
Do I need to provide my name?
No. The survey will capture anonymous data.
I have some questions
Please also feel free to add questions on the form below, or to email MPD Voice directly at info@mpdvoice.org.uk for more details. A survey information sheet with more details is available; please contact us if you would like one emailed to you.